Ciao stelline oggi un'articolo diverso dal solito, guardo ogni settimana le Iene, ieri guardando la puntata mi ha colpito ed emozionato molto la storia di Claudia, a dirvi la verità proprio lei quando parlava l'ascoltavo rapita , vedevo il suo dolore e ho visto tanta forza nei suoi occhi ,spero che ci sia un futuro migliore per lei. E così ho deciso di scrivere quest'articolo per aiutarla nel mio piccolo a far luce e a capire la sua malattia che ancora non ha un nome perché non sono riusciti a capire che malattia ha colpito Claudia.
Dalle iene ho preso sia il video che lo scritto, così che potete capire meglio, la mia è solo una piccola voce per un dolore e una speranza per Claudia, chiedo di condividere più possibile.
https://www.facebook.com/video.php?v=10152848329080530&permPage=1
Let's give a name to Claudia's disease (English Sub)
Ecco la versione sottotitolata in inglese della storia di Claudia.
CONDIVIDETE QUESTO VIDEO IL PIU' POSSIBILE NEL MONDO. #HelpClaudia
CLAUDIA’S MEDICAL RECORDS
Firts symptoms at the age of 5: vomit, tiredness, loss of balance, sudden falls.
After two years the vomit disappears but falls became more and more frequent. Tiredness becomes persistent, muscular weakness becomes progressive and she started suffering a persistent belly pain.
Her growth is very slow but until the age of 13 she can walk on her legs.
In June of 2013 she has a breath arrest. She has surgery and the surgeon extracted from her lungs a block of mucus as big as an apple. She never suffered of breath problems before, just occasional common colds.
After this episode and the consequent intensive care hospitalization, she becomes unable to get up and walk, although she still can move her hands and legs.
Her diet consist in meat, pasta and vegetables but if she eats milk or other dairy products her conditions get worse, despite lab tests say she’s not allergic.
Clinical examinations escluded that Claudia is affected by one of the known degenerative diseases, for example ALS or Duchenne syndrome.
Today Claudia is 15 years old and her disease is still unnamed.
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CONDIVIDETE QUESTO VIDEO IL PIU' POSSIBILE NEL MONDO. #HelpClaudia
CLAUDIA’S MEDICAL RECORDS
Firts symptoms at the age of 5: vomit, tiredness, loss of balance, sudden falls.
After two years the vomit disappears but falls became more and more frequent. Tiredness becomes persistent, muscular weakness becomes progressive and she started suffering a persistent belly pain.
Her growth is very slow but until the age of 13 she can walk on her legs.
In June of 2013 she has a breath arrest. She has surgery and the surgeon extracted from her lungs a block of mucus as big as an apple. She never suffered of breath problems before, just occasional common colds.
After this episode and the consequent intensive care hospitalization, she becomes unable to get up and walk, although she still can move her hands and legs.
Her diet consist in meat, pasta and vegetables but if she eats milk or other dairy products her conditions get worse, despite lab tests say she’s not allergic.
Clinical examinations escluded that Claudia is affected by one of the known degenerative diseases, for example ALS or Duchenne syndrome.
Today Claudia is 15 years old and her disease is still unnamed.
